Surely life doesn’t have to end this way! My own views on the Liverpool Care Pathway.

It has been a while since my last blog as I have been wanting to post this one but must have changed it a hundred times as I don’t want to antagonise anyone – anti euthanasia, pro the Liverpool Care Pathway etc. or upset anyone who has lost someone on the so-called CARE pathway.

But if I don’t post it soon I will never post it.

There seems to coincidentally be an awful lot about it in the newspapers at the moment too.

But I just feel I need to write this and get it off my chest as I have been agonising over this for nearly 4 years now.

THIS IS ENTIRELY MY OWN OPINION FROM THE EXPERIENCE I HAVE HAD WITH MY OWN MOTHER

If you were marooned on a desert island with no food or water, what would happen – your body would die!

So if you are lying in a hospital bed and you were given no food or water, then what would happen – your body would die!

If you are lying in a hospital bed and you are given a lethal injection, what would happen – yes, you’ve got it – your body would die!

I KNOW WHICH I WOULD PREFER!

The decision is made to end the life of your body at the point they put you on the Liverpool Care Pathway so at that point it is euthanasia – just slow euthanasia.

Due to some very outdated laws and oaths doctors can now put you on a slow death route as they are DOING NO HARM but they are not allowed to give you a lethal injection.

So instead of the nice painless quick ending that we would be kind enough to give our pets, they can only subject the body to die on its own through lack of the vital sustenance it needs to survive.

If we did it to a child, elderly person or even a pet AT HOME we would be charged with neglect. But do it in a hospital or care home and they put the name CARE into a form of euthanasia.

I am not against the Liverpool Care Pathway as such because it can save a person from living in a state that they would never be happy in again and may save them a long time in pain.

What I am against is not changing the law to enable doctors to sign the papers for a fast instant injection instead of signing the papers to withdraw all nutrition and fluids, when it gets to that point in a person’s life.

SOMETHING IS VERY WRONG HERE in this day and age.

It is a cruel way to end the life of a body.

I will never stop feeling “guilty” as I sat day after day at my own mother’s bedside and looking into her eyes knowing that her body was slowly being put to death, while she was muttering that no-one was feeding her and that she was thirsty.

Don’t get me wrong, she was 92 years old and had not really had much of a life for the last couple of years and she was in hospital because she had had a stroke.

After 3 weeks she could still hardly move and would have absolutely hated to have been in that state for the rest of her days but she was conscious and talking as best she could although it was hard for her to get the words out and sometimes she wasn't making any sense and her hand seemed to be writing what she wanted to say at the same time.  But she did know they were not feeding her and kept telling me, even if she only knew subconsciously.

I had been unable to visit her on the Sunday and when I came in on the Monday they didn’t say anything but when I spoke to the nursing staff they mentioned that her feeding tube had FALLEN OUT on Saturday. I thought they stitched those tubes in!

They said that as no doctors were around over the weekend the tube had not been put back in.  Then they gave me a leaflet on the Liverpool Care Pathway which I guess was supposed to answer most of my questions before I saw the doctor as his time is precious.  They said I could make an appointment to see the doctor the next day if I wanted.

So by the time I could see the doctor and complain / approve their decision 3 days had already passed and her organs were already damaged, probably past the point of no return.

I was told she would not last more than a day or so in her weakened state as she was effectively already into day 3 of the Pathway. She actually lasted 5 more days after that.

I don’t know how awful that felt for her to not be given nutrition and fluids, and more importantly I have no idea how horrible it must have felt for her to have her organs shrivel up and die slowly inside.

But I do know how awful I felt knowing that it was 100% certain that her body was about to die and there was nothing I could do to end it quickly for her.

We don’t do this cruel thing to our pets and we shouldn’t have to do it to our loved ones either. It is cruel to them and it is cruel to us.

The current newspaper articles are about whether people are put on the LCP unnecessarily or without permission from the relatives.

But having been through this, my point is that if it is clear the patient will not get through the illness or will have no quality of life left in their last remaining days, then surely we can save them having to go through this awful process and end it in a more humane way for them. It is not dignified to put them through this ordeal when there is a simple way out.

In circumstances like this it is time to change the law!